 |
 |
 |
 |
 |
||||||
 |
 |
|||||||||
 |
 |
 |
 |
 |
 |
|||||
 |
|
|
|
|
|
|
|
|
|
|
|
|||||||||||||||||||||||||||||||||||||||||||
|
|||||||||||||||||||||||||||||||||||||||||||
|
|||||||||||||||||||||||||||||||||||||||||||
Other Resources and Links
The following links have been provided by the Gynecologic Cancer Foundation, the Ovarian Cancer National Alliance and by POCRC as a service to inform the public of available resources. Though the utmost care has been taken to ensure quality resource links, the accuracy and reliability of the information which they offer is the responsibility of each of the organizations listed.
National Cancer Resources:
American Cancer Society
The American Cancer Society (ACS) is a nationwide, community-base, voluntary health organization dedicated to eliminating cancer as a major health problem. ACS materials include pamphlets, booklets, brochures, bookmarks and shower cards providing general information on pap tests, and other cancer related materials. The ACS has materials in Spanish and Chinese.
National Cancer Institute (NCI) Cancer Information Service
A national central clearing-house, the NCI Information Services is a practical first stop for those first diagnosed with cancer. Trained personnel provide medical information by telephone Printed materials include "What You Need To Know about Ovarian Cancer", lists of cancer centers and clinical trial information.
National Ovarian Cancer Coalition (NOCC)
NOCC is a national membership organization with state chapters. Its informational packet contains information about a wide range of ovarian cancer issues and resources. NOCC promotes awareness and education for the general public and medical community and funding for research to find an early detection mechanism.
Ovarian Cancer National Alliance
This national umbrella organization works to increase public and professional understanding of ovarian cancer, and to advocate for more effective diagnostics, treatments, and cure. Members include survivors and family members, local and national organizations, and health care providers. Materials include awareness information and national policy issue papers. The Alliance sponsors an annual Advocacy Conference.
Society of Gynecologic Oncologists (SGO)
The SGO is a professional organization of specialists trained in obstetrics and gynecology who subsequently took formal training (surgery, radiation therapy, and chemotherapy) to become qualified to participate in all effective forms of treatment of women with gynecologic cancers. Affiliate members of the SGO are specialists in radiation therapy, medical oncology or pathology who have particular interest and skills in gynecologic cancer care.
U.S. Public Health Service's Office of Women's Health
This office provides national leadership in advancing women's health through public policy, research, service delivery, and education. It develops, simulates, and coordinates women's health research, health care services, and public and health professional education and training across the agencies of the Department of Health and Human Services. Programs include eighteen Centers of Excellence in Women's Health, which serve as models of integrated and comprehensive women's health research and clinical services, including regular screening for breast, ovarian, and cervical cancers.
Family History Awareness:
Lahey Risk Assessment Clinic
Information on family history of breast and ovarian cancer and genetic testing as well as a list of risk assessment clinics nationwide.
Gilda Radner Ovarian Cancer Familial Registry
The registry tracks families with a history of ovarian cancer, and offers a help line, education, information and peer support for women with high risk (family history) of ovarian cancer.
Ovarian Plus: Gynecologic Cancer Prevention Quarterly
The newsletter has timely information about international research, diagnosis, and treatments for ovarian cancer and the other gynecologic cancers. It targets risk reduction, screening, early detection, psychosocial and policy issues, and addresses current events in the ovarian cancer community. Published by a journalist with a strong family history of ovarian cancer, it features a Medical Advisory Board of prominent ovarian cancer researchers, and articles by medical writers.
Ovarian Cancer Support:
Pacific Northwest Support
Gilda's Club Seattle
Gilda's Club is named in honor of Gilda Radner, who, when describing the emotional and social support she received when she had cancer, called for such places of participation, education, hope and friendship to be made available for people with cancer and their families and friends everywhere.
Team Survivor Northwest
Team Survivor Northwest is a non-profit organization founded in 1995 that provides health education and exercise programs for women affected by cancer in all stages of treatment, recovery and survivorship. Our mission is to encourage all women cancer survivors to take an active role in their health and well-being and promote regular exercise with an emphasis on a wellness concept for living.
National Support
Cancer Care Inc.
Cancer Care, Inc. is a national nonprofit agency dedicated to providing emotional support, information, referral, and practical assistance to people with cancer and their loved ones, at no charge. Cancer Care has helped over a million people nationwide through its office-based services, and via the internet. In 1944, Cancer Care was founded on the principle that "living doesn't end when cancer begins."
CONVERSATIONS!
The Newsletter for Those Fighting Ovarian Cancer. A monthly newsletter written by an ovarian cancer survivor, which reports on treatment options, clinical trials, coping skills, and early detection strategies. Conversations offers humor and an upbeat tone. A networking service to match women in similar circumstances is available.
Gilda's Club
The mission of Gilda's Club is to provide a place where people living with cancer, their families and friends can join others to build social and emotional support as a supplement to medical care. In addition to the flagship facility in New York, there are Clubs in other cities across the country.
Clinical Trials:
UCSF Cancer Center Clinical Trials
The UCSF cancer center maintains a clinical trials website which includes descriptions, criteria, and contacts for all cancer trials for which UCSF is enrolling patients, as well as many useful links.
National Cancer Institute Clinical Trials
A recently revamped website provided by the National Cancer Institute, the federal government's leading funding agency for cancer research and clinical trials.
PDQ Clinical Trials Database
Also from NCI is PDQ, a database of clinical trials searchable by several criteria.
General Resources:
Talbot Research Library
The Fox Chase Cancer Center Talbot Research Library for medical professionals.
National Ovarian Cancer Awareness Month
Proclamation by the President of the United States.
Online Medical Dictionary
An easy-to-use reference tool to look-up unfamiliar medical terminology.